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Advocate Down Syndrome

#29DaysofAwareness February 21st

The Down Syndrome Association of the Philippines puts together The Happy Walk for our members every year. This is the biggest event for our month long celebration of Down Syndrome Consciousness Month and is by far the most fun activity we attend with DSAPI for the whole family. 

Did you know that a child with Down Syndrome is born every 4 hours here in the Philippines?

Contrary to what many people believe, babies with Down Syndrome are not ONLY born to mothers who are older. Truth is most children with Down syndrome are born to women younger than 35 years old simply because younger women have more children.

However, the likelihood of having a child with Down syndrome does increase with the age of the mother, especially after age 35. If you pan the crowd during HAPPY WALK, you will see a wide range in the age of the families who attend this celebration of Trisomy 21.

 

@myedeleon Look! #teamgellibean #happywalk2016

A photo posted by Michelle Aventajado (@mommanmanila) on Feb 16, 2016 at 7:31am PST

To prepare for the entire day with our DSAPI family and friends we had tick some items off our list:

            • I made sure the whole family has a good night’s rest the day before
          • We had our Team Gellibean tshirts made ahead of time with the help of my friend Mye De Leon. Check out her website, you’ll love it.
          • We had banners made, balloons blown up, sneakers ready for walking, and our cameras were charged.

The whole event is full of love and laughter. There’s dancing, eating, catching up with old friends, making new friends with brand new babies, and maybe even learning something new.

DSCF2167 copy Sometimes, there a HAPPY tears, most of the time there are belly laughs, and if we are lucky, there is a ton of excitement in anticipation of the celebrities who may grace our event for the sake of our children. It’s truly fun for the whole family. DSCF2210 copy

This year differed a little bit from the last three years that we attended as a family. Even though I’m super behind in my blog posts, I wanted to take the time to list a few things that were different this year for us.

OUR TRIBE HAS GROWN

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Team Gellibean started with only 6 members. It formed the day she was born, and solidified as a team when we spontaneously prayed to bring her home while she was in the PICU at St. Lukes in BGC.

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This year, we had a few more family members and friends from the metro area join us in our walk for awareness. Lolo and Lola were there despite Lolo feeling under the weather.

 

Photo Credit: SM CARES

Photo Credit: SM CARES

Gellibean’s Ninang was able to carve out some time from her busy schedule to join us before the walk, and we had some new family friends ask to join the festivities because they too, wanted to support Gelli as they love her so. Even my favorite cousin, Nino’s other cousin and our favorite Tita walked with us.

 

  #TeamGellibean for #HappyWalk2016! #ProjectInclusion #healthierPH   A photo posted by Unilab Foundation (@unilabfoundation) on Feb 20, 2016 at 5:13pm PST

BEHIND THE SCENES

Because I was involved in the planning committee this year, I developed a respect an understanding of all the hard work and preparation that makes this event such a grand success. And this year it truly was a grand success, even if you only consider the sheer number of people that turned out to walk for awareness.

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A NEW FORMAT

In years passed, we would all walk together and then our family would peel off to have lunch before going home. This year’s event was different in the sense that it was much more interactive. With a suggestion from our major sponsor, SM CARES, the organizing committee put together the theme of the HAPPY WALK in a way that it was more like a FAMILY DAY filled with carnival activities.

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Prior to this year, upon returning to the dome, it was more like a show, a program that some of the kids would be involved by dancing or singing on stage, filling time with raffle prizes, and not very conducive to a little one (like Gellibean) who wants to run around and who is still quite active. Gellibean still can’t sit through a two hour movie, let alone an afternoon filled with people on stage whom she doesn’t really know. 

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This new format for the event allowed the kids to go around, play in the game booths, collect prizes, and get to know other kids through their playing. There was fun for all ages through the sponsored booths, and this allowed for our family to stay the entire day without worrying that even my big kids would be bored or complaining and wanting to go home.

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A NEW HOME

Happy Walk 2016 had the biggest turnout to date. Some of the newspapers are totaling the numbers as well over 2500 attendees, but I might even say that it was much more. We have transferred to a bigger home as our group was bursting at the seams in our old home of SM North Edsa The Block.

Photo Credit: SM CARES

Photo Credit: SM CARES

This year’s event was held in SMX and we proudly marched the sounds of our own drums (and marching bands) around SM MOA thousands of people deep, happily pushing strollers, carrying our banners, and waving our flaglets to show the world just how proud we are to all be on the same team.

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TEAMWORK

Another difference that is significant, was the fact that HAPPY WALK chairman, Agnes Lapena, invited Best Buddies to be part of the Happy Walk. When Gellibean was born, I felt that I was part of something greater. I identified myself as someone who stood up for all children with special needs. While I may have a little bit more understanding what it means to be a parent of a child with Down Syndrome, I empathize and fight for all children like her because I know that there is still so much work to be done here in the Philippines

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I do a lot of this work with several organizations. I am lucky that I have been invited by foundations like The Center for Possibilities to take part in a ground breaking documentary where Gelli was featured. I am honored to be included in the planning committee for the HAPPY WALK and other seminars that are vital for community building within the Down Syndrome Association. I collaborate with groups like the B.E.S.T. Education Program to figure out how we can arm our educators to better serve our children through a child centered, inclusive classroom.

 

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I honor and support the work that Unilab Foundation provides for a safe environment for adults with intellectual and developmental disabilities to work in, because they are trail blazing the way for INCLUSION in the workforce. AND of course, I volunteer my time for Best Buddies because I know how important it is to have a friend. 

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All of these orgs came together to support our children for the HAPPY WALK. AND when we support one another, the only thing that will come out of it IS GOOD stuff. REALLY GOOD STUFF. 

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So, you can imagine how full my heart was when I spoke on stage to give a brief explanation of what we do with Best Buddies. I shared how other parents can volunteer, and our Buddies were invited to go on stage and offer their cheer for everyone to learn.

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I look forward to more collaborations with all of the orgs and foundations that I volunteer for, because I KNOW THAT THERE IS STRENGTH IN NUMBERS.

NEW PROJECTS TO SUPPORT

Throughout the fun filled day, there were many new projects to get excited about. One in particular that I would like to share with you all is a new movie in the works by Director Randolph Longjas. Apparently, I met Randolph as he was the assistant director of one of my first tv commercials more than a few years ago. I was glad to see him again, during the last holiday party of DSAPI as he scouted for talent for his new project in the San Lorenzo Covered Court this past January.

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Van Damme Stallone will be shown as part of Cine-Filipino 2016, and I cannot wait to watch and attend the activities that will come from this collaboration with DSAPI. Remember Kuya Paolo from the McDo Commercial? Well, he’s the star in this one! HOW EXCITING IS THAT? 

Oh, and Gia’s classmate Derek? He has a little brother named Jad.

Jad plays the younger Paolo in the movie. He’s super cute.

NEW FOUND INSPIRATION

I look forward to Happy Walk every year. I am proud to show off my baby girl. My heart is full to walk with family and friends who are proud of Gellibean as well. I feel like this is going to be a wonderful year full of lots of baby steps towards inclusion, #ChangingTheFaceOfBeauty, and collaboration. 

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I feel it in my bones.

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New Coffee Shop Alert!!! ☕️ @thegoodstore.ph is New Coffee Shop Alert!!! ☕️

 @thegoodstore.ph is a social enterprise that has made it their mission to connect socially conscious consumers with products that are deeply rooted in advocacy.

From cacao that is sustainable farmed to coffee that promotes peace in Mindanao, The Good Store has a plethora of products good for home, for cooking, for the table, and even fashion…all of which benefit smaller communities of Filipinos whose lives are directly impacted when you make a purchase.

Purpose + good coffee = The Good Store.
Things that just make sense. #Thanksgiving Are y Things that just make sense.

#Thanksgiving

Are you guys celebrating tomorrow?

What’s on the menu?

#sharingiscaring
Such a fun day with the fam bam! #TeamGellibean go Such a fun day with the fam bam! #TeamGellibean got to attend the advanced screening of #Moana2PH @ayalamalls.manilabay 

Viewing Moana’s ocean adventure on the A-Giant Screen with Dolby Surround System reminded us of our love for our favorite female wayfarer and her Demi-God bestie. 

We all had a great time and took the opportunity to explore this new to us, mall so we could grab a bite to eat after working up an appetite!

Moana 2 opens in theaters on November 27th and it will surely be a wonderful opportunity for more family bonding with the kiddos-especially if we can explore #AyalaMallsManilaBay again!

Next on our list is @gelliaventajado ‘s favorite sorcerers…

How about you? 

Will you go and watch Moana in her new adventure with Maui?
@gelliaventajado was so happy to wear her favorite @gelliaventajado was so happy to wear her favorite outfit inclusive of her favorite #Wicked socks.  We had the privilege of watching Wicked at the @gershwintheaterbroadway and one of the souvenirs we brought home for her Ate @gi.aventajado were the mismatched socks. 

Gelli has now claimed them for her own. 😂🤣😂

Who’s ready to watch Wicked?? 🙋🏻‍♀️

Let’s go?
💗💚
Super looking forward to this event. See you there Super looking forward to this event. See you there?

Let’s learn about how to connect better, with ourselves, our childen, and the world. See you at @Mommy Mundo’s MomCon 2024: #CalltoConnect !
On Nov 23, 2024 9-6:30pm (PH time)
In person at the Samsung Hall, @SmAuraPremier
or from anywhere in the world on livestream

Get your tickets at mommymundo.com/momcon2024 

Photo by @stanongphotography for @mommymundo

#MommyMundo
#MomCon2024
#Mompowerment
#MomConnect
Story time: my son loves Puto Bumbong so much, he Story time: my son loves Puto Bumbong so much, he learned how to make it while we were in lockdown.

This marks the beginning of the holiday season for so many. How about you? Is there something you enjoy that marks the beginning of the most wonderful time of year?

Sharing is caring!
Had the pleasure of attending the media launch of Had the pleasure of attending the media launch of #MomCon2024 and was so happy that @janicecvillanueva came home for the event!

What is MomCon?

It’s a #CallToConnect for parents.

💜 Connect to ourselves
💜 Connect with our children
💜 Connect with the world around us

This is our opportunity to tune in and learn from experts during the Face to Face event in the Samsung Hall in @smaurapremier AND to attend online sessions in this hybrid event. 

Plus if you are part of our @bestbuddies_ph community you can avail of the special community partnership with @mommymundo by using our code at checkout: MomConBestBuddiesPH

This offer is good for any Mom or Dad or Tita and Tito who have a learning mindset and want to avail of this special offer.

In person ticket value is P1000/per person and is inclusive of a conference kit, certificate of participation, and a loot bag filled with all the fun and useful products from the conference partners. 

Register here for your complimentary ticket when you use our @bestbuddies_ph Coupon Code!

https://bit.ly/MomConBBP
I love it when a @bestbuddies_ph event comes toget I love it when a @bestbuddies_ph event comes together so easily. When Sandra Cheng shared that she was willing to share more about her benefits of @easecox.ig essential oils with our buddies, the team and I quickly brainstormed a program flow that was in line with this opportunity to learn. 

Grateful for @monicaemanzano who was so game to share a movement segment from @flowretreats. She thought of @curatedgoodfood who generously shared preservative free dimsum which goes perfectly with our healthy sammies from @h2v2partyneedsandcatering. @komida.foods has been a consistent supporter of our mission and events since last year. We are grateful for their continued mission of providing healthy snacks for our events!

We opened with @joanngue.mlg pranayamic breath work, moved on to a yoga flow with Monica, followed by mindfulness with @enzoarmovit, a gratitude circle, and then esssential oils for beginners with Sandra from Easecox Philippines.

What a wonderful morning spent with our Buddies in BGC! 

Thank you to everyone who made this event so easy to conceptualize and mount! 

PS. If you would like to be a buddy. Please PM me. Bugsy and I are so blessed to have one another and I love that we get to do things like this together!
Colors. My first girl got to go on her first med Colors. 

My first girl got to go on her first medical mission in October. 

Gosh, they grow up so fast. 

We bought her new scrubs for the trip. It feels like yesterday when I was buying her green skirts and black Mary Janes for grade school.

Now she’s all grown. On her way to becoming a doctor.
At some point during the evening, @gelliaventajado At some point during the evening, @gelliaventajado turned to me and said “Mom, thank you so much for bringing me here. I love Frozen.” 

As Gelli continues to grow up, some things remain the same. Her love for princesses, her love for her siblings, having fun with the family, and music and dance in any form. 

What an enchanted evening we had visiting the Samsung Theater in @_circuitmakati to watch the FROZEN film in CONCERT with a LIVE ORCHESTRA. From the moment Gelli hear the orchestra’s accompaniment to the film, to the vocalists who sang along, she was mesmerized.

Thank you @dotdigitalph for inviting Gelli to experience this up close and personal!! She had a blast!
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