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Advocate Down Syndrome

#29DaysofAwareness February 28th

For this post in #29DaysofAwareness, I thought it would be a good idea to share with all of you just a few resources available here on the internet for new parents. 

There is a wealth of information out there for new parents of children with Down Syndrome. 

We are lucky. 

We can google. We can visit the library. We can buy books on Amazon. We have support groups. We can read blogs. We can use hashtags to search for up to the date information on studies and follow influencers who understand the advancements of medicine and technology and the implications on raising a child with Down Syndrome.

Immediately after I came home when I gave birth to Gelli, (and she was still in the hospital) I stayed up all night, pumping, reading blogs, and sending links of books that I wanted my sister Nicole to purchase for me from Amazon so she could bring them here to Manila. I read some of the reviews, not all. I searched and was drawn to the books with the most reviews, those that were listed at the top of my search, and I searched for stories of other mommas. I asked my sister to buy at least 4 memoirs in my list of 11 books that I felt would help me start my journey of raising Evangelina.

I felt armed with information. To be honest, it was probably way too much information. But at least I have the books that I can use and reference, or even pass on to someone who might need and want them now.

When I first signed on to twitter, my whole world opened up. With one search of a hashtag, I could suddenly read all the up to date information on everything related to Down Syndrome. 

Through the years, I have found a few blogs that I really enjoy reading. I follow them and their Facebook pages pretty closely. I look for the new information they share. I like watching their kids grow up. Most of all, I like the way each of these bloggers make me think…

1. Kimchi and Latkes

2.  A Little Moxie

3. Love that Max

4. Enjoying the Small Things

5. Manila Mommy

6. My Stubborn Little Miss

7. Confessions of The Chromosomally Enhanced

8. Ben Through it All

9. Down Syndrome, A little bit extra

These are the sites I would suggest to new parents. They give you a ton of information. You need these sites after you go through the roller coaster of emotions that accompanies your child’s diagnosis. 

1. National Down Syndrome Society

2.  National Down Syndrome Congress

3. Down Syndrome Diagnosis Network

4. Down Syndrome Prenatal Testing

5. Down Syndrome International

6. International Down Syndrome Coalition

7. Down Syndrome Association of the Philippines

Other resources

1. Unexpected-Downloadable PDF for parents who just received a diagnosis. Collaboration of stories put together by DSDN.

2. For doctors-Another great resource from DSDN. I think EVERY doctor in the position to give a diagnosis to ANY parent should read this. 

3. The Down Syndrome Diary-Started by the momma of Ben. She has graciously included The Philippines in her soon to be book. Similar to Unexpected but handwritten by parents and siblings complete with photos. TDSD is Unexpected in an “old school” way. It’s for those of us that still LOVE pen and paper and the cracking open of a leather bound journal.

4. Yoga for the Special Child-One day, I hope to certify in this type of yoga. I think Sonia Sumar is wonderful for putting together this program for her daughter and sharing it with everyone. 

5. The Parent’s Guide To Down Syndrome:

Screen Shot 2016-03-06 at 6.46.22 AM

This is a new book for parents, by parents of kids with Down Syndrome. I haven’t read the book yet, BUT all the online reviews give it a thumbs up. Will be looking for this book to add to my collection.

These are just a few sites and resources that I have found helpful.

Do you have an sites that you would like to share?

 

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It’s December 1st! Is there anything more delic It’s December 1st!

Is there anything more delicious than the smell of Christmas and the new found freedom as we anticipate celebrating the holidays with our families again?

@festivalmall has hosted a series of musical shows since November 5th that include Ace Banzuelo and Silent Sanctuary. Check out Michael Pangilinan on December 10th, too!

With Santa visiting, Christmas parties, arts and crafts and lots of promos, you can even enter for a chance to win a Toyota Fortuner!

Best of all-I love it when the places we know give purpose to their celebrations. Thank you #FestivalMall for partnering with @dsapi1  this holiday season. 

Thank you for sharing all the different ways we can celebrate the holidays with you!

#tistheseason #seasonofgiving #downsyndromeawareness #aintnothingdownaboutit #upsyndrome
I have always been intimidated by Cornish Hens. Th I have always been intimidated by Cornish Hens. Through this learning exercise with @usapeecphl, I have learned a bit more about these little birds that have bigger breast parts, and thank you Chef @ivoryyat for showing me how easy it is to prepare Greek Lemon Roasted Cornish Hens with Roasted Potatoes.
 
Clean and fresh flavors are perfect for these smaller birds that are rich in protein with zero carbs. Try the recipe in the comments section. I’m sure you’d enjoy it as much as I did!
 
Interested in U.S. Cornish Hens? You can buy them in stores near you. #CornishHen #USCornishHen #PoultryPerfection #CookingWithUSPoultry #USPoultry #USAPEECPHL #ad
@gi.aventajado and I played with some of the @pura @gi.aventajado and I played with some of the @puratosph products that they sent over the other day. Ready to use Bavarian Cream made these Cream Puffs easier than ever. I think we have to figure out how to temper our couverture better…

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@mommymundo always has a way of bringing together @mommymundo always has a way of bringing together just what we need, no matter the time of year. Loving these photos of my first boy that were snapped @expomom.

Anyone else thinking about #HolidayPhotos? I am not one of those moms that has it all together before Christmas. It’s usually a mad dash for us at the end of the year, but if it’s anything that the past few years has taught me, it’s that the little things are what makes the Christmas special.

Many of us haven’t been together with the extended family or even our immediate family in so long. That means it’s the perfect time to document.

@nextbymetrophoto will be hosting one last Christmas Marathon family photo shoot before the end of year. Check them out or shoot them a message. They have some cute set-ups.
****GIVEAWAY ALERT*** 10 things I LOVE about @sed ****GIVEAWAY ALERT***

10 things I LOVE about @sedahotels listed here and on FB!

1. Each property has a Signature Dish. If you can’t make it to Bacolod, you can still enjoy Chicken Inasal in any of their properties.

2. Clean Design. So easy to work and play in a space that is light, modern, and clean in design. 

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4. Spacious Rooms and Residence Stays. Staying in the Three Bedroom Premier was perfect for our family. 

5. Attentive Service. Everyone was pleasant and accommodating.

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7. Work with ease. Internet service is uninterrupted. Meeting rooms are available and easy to book.

8. Relax and Play. From mid-day tubbies with Gelli to, taking advantage of the pool, or the children’s room, the little girl had more than enough things to keep her busy!

9. #FamilyTime. Spending an extended amount of time outside our own space led to laughter, fun conversations, and opportunities to try new things. We were comfortable and rested in the space we were in, which meant more opportunities for us to connect.

10. Homegrown with a Purpose. A Filipino brand that understands the importance of both work and travel, each property is important to the city & province location. Environmentally aware by adopting Mayumi, a Philippine Bald Eagle. 🦅

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Up for grabs is one night in a ONE BEDROOM DELUXE for two persons with breakfast!

Here’s how to enter to win:
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3) Tag a friend (or more) who love(s) staycations too!
4) Comment why you should win this staycation treat!

Plus points for people who share this post in stories and the winner will be announced on December 6th.
Thankful for work that doesn’t feel like work. Thankful for work that doesn’t feel like work.

@kitchen143 is something I really do love. Sharing a little bit of my kitchen with viewers and followers brings me joy. Even better when I get to work with chefs whom I can learn from and friends who like to spend time in the kitchen too!

#Thanksgiving
Thankful for the gift of music. Wish I caught mor Thankful for the gift of music.

Wish I caught more mini moments from We Will Rock You.

Such a great musical!

@sedahotels 
#sedaresidencesmakati 
#sedaat10
Thankful for @bestbuddies_ph. @gelliaventajado j Thankful for @bestbuddies_ph. 

@gelliaventajado joined our family and led me to @bestbuddies. 

Thankful for all the ambassadors who were able to spend time with us. And for @smlpeeps  and @asurionphcareers for helping make magic happen on Saturday afternoon for #Friendsgiving.

#Thanksgiving #bestbuddiesph
Thankful for women who share their faith with me. Thankful for women who share their faith with me. 

#Thanksgiving
Is there anything better than a stuffed turkey at Is there anything better than a stuffed turkey at this time of year? Whole turkeys require serious commitment to cook. #IYKYK But because U.S. Poultry is now available here in the Philippines, that also means preparing turkey is a tad bit easier.
 
Frozen U.S. turkey products are available and ready to cook for people who want to dabble with flavors for this bigger bird but aren't sure how.
 
Thank you to Chef @ivoryyat for putting together a medley of my favorite fall flavors. This combination of apples, sweet potatoes, and maple syrup perfectly compliment  the roasted turkey leg and remind me of flavors and scenes from back in New York. 
 
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