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Advocate Down Syndrome

Happy Walk 2014

Team Gellibean continues to grow in love and support each year for the Happy Walk.

Team Gellibean continues to grow in love and support each year for the Happy Walk.

Every year in February, our family is a little bit busier than usual. As parents, we normally plan many of our activities around our kids no matter what time of year it is. In February,  however, many of our activities are planned because we have a been gifted a child with an extra chromosome.

Each year we look forward to making new friends we meet online or through our DSAPI sponsored events. This year, we were able to connect with Hailey, and her mom, Justine.

Each year we look forward to making new friends we meet online or through our DSAPI sponsored events. This year, we were able to connect with Hailey, and her mom, Justine.

Gellibean (Evangelina) was born with Down Syndrome and forever changed the way our family worked. She helped me see just how strong her dad’s faith in God was, and she also showed me how wonderfully loving and accepting my three big kids were. She has given me the ability to see stoic strength of my own mother, and it is because of her birth that I have also learned to admire the strengths in many of the other mothers I come into contact with on a daily basis.

Of course, we also enjoy the time we spend with our "old" friends as well. Liam and his family are near and dear to our hearts.

Of course, we also enjoy the time we spend with our “old” friends as well. Liam and his family are near and dear to our hearts.

She’s allowed me to live a life where I have learned to put judgement aside, of of course in all her perfection she has been able to silently show me my flaws…inside and out. She has caused me to pause and realize what’s really valuable in this life, and she has reminded me that much of what is valuable you can’t put a price tag on. She’s helped me filter through the friends and acquaintances that I needed to move on from, and has solidified our love and trust in relationships that may have needed repair in our own families.

Seeing the support that all the kids have within our organization from their own family and friends is inspiring and contagious! Baby girl Joey even had family come all the way from the States to support her!

Seeing the support that all the kids have within our organization from their own family and friends is inspiring and contagious! Baby girl Joey even had family come all the way from the States to support her!

She has given me the courage to start this blog-and whether she knows it or not-I really needed her. I was in a different place and time before she was born. I thought I had REAL problems. Don’t get me wrong-my life is not a bed of roses now that we have a child with 47 chromosomes…it’s different yet it is the same.  But ONE major aspect of my life has changed because she chose me to be her mom. Evangelina has given me the gift of PERSPECTIVE.

I was able to touch base again with JP and his Dad this year. JP blogs too!

I was able to touch base again with JP and his Dad this year. JP blogs too!

It’s my appreciation of the little things and the innate goodness that I see in people which I can credit to her. In fact, I dare say that she has also brought out that good in each and every one of us even within our own family.  Actually, I think she has quite a knack for tapping into people’s “goodness.”

Sponsors and Donors large and small help us keep everyone safe and happy during our celebrations spaced through out the month. February is a big month for us, because we raise all of our money for the entire year's programs and outreaches during this time.

Sponsors and Donors large and small help us keep everyone safe and happy during our celebrations that are spaced throughout the month. February is a big month for DSAPI, because we raise all of our money for the entire year’s programs and outreaches during this time.

While I’m sure that many could debate the fact that human beings are naturally kind and compassionate, I have always clung to the theory that we are blank slates; compassionate and kind individuals, who would like to help one another. Gelli has reinforced the belief in that theory for me.

Most of all, I'm filled with gratitude during these activities. I see the hard work of the parents and children who come before us. They have paved the way for our family, as we will continue to pave the way for families we will come across in the future. In this picture, Elmer Lapena gives a short talk to those who are attending morning mass explaining the celebration taking place.

Most of all, I’m filled with gratitude during these activities. I see the hard work of the parents and children who come before us. They have paved the way for our family, as we will continue to pave the way for families we will come across in the future. In this picture, Elmer Lapena gives a short talk to those who are attending morning mass explaining the celebration that is taking place.

So, in February, (like in August when Gelli was born) I am reminded to live and feel just a little more grateful. I am reminded of where and who I was before she was born. What I thought was important before Evangelina came into our lives, is not necessarily what I deem to be important now. In short, you can even say she made me…a better version of me. As she continues to grow up she still helps me to be a better person, even if she is too young to understand the idea of it.

It is because of the DSAPI parents and siblings that the Happy Walk is such a big success every year. We continue to grow in numbers and we couldn't accommodate the growing number of parents and families with Down Syndrome without the help of major sponsors like SM Cares.  The parents behind the organization are thankful for SM and all the support.

It is because of the DSAPI parents and siblings that the Happy Walk is such a big success every year. We continue to grow in numbers and we couldn’t accommodate the growing number of parents and families with Down Syndrome without the help of major sponsors like SM Cares. The parents behind the organization are thankful for SM and all the support.

Gelli has allowed me to become more introspective. She has encouraged me to become more self aware. It is through that self awareness that she has gifted me with inspiration beyond measure…happiness beyond laughter…and the tears of sadness and disappointment have long been gone to be replaced by tears of gratitude…and YES…TEARS OF HAPPINESS, AND PRIDE, AND GRATITUDE.

Even if our immediate circle of support for Gellibean begins with our own immediate family, it is through sharing our experiences and celebrating during events like the Happy Walk, that we can continue to foster an understanding and acceptance of all children with Down Syndrome.

Even if our immediate circle of support for Gellibean begins with our family, it is through sharing our experiences and celebrating of events like the Happy Walk, that we can continue to foster an understanding and acceptance of all children with Down Syndrome and special needs.

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Clean and fresh flavors are perfect for these smaller birds that are rich in protein with zero carbs. Try the recipe in the comments section. I’m sure you’d enjoy it as much as I did!
 
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10 things I LOVE about @sedahotels listed here and on FB!

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2. Clean Design. So easy to work and play in a space that is light, modern, and clean in design. 

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Frozen U.S. turkey products are available and ready to cook for people who want to dabble with flavors for this bigger bird but aren't sure how.
 
Thank you to Chef @ivoryyat for putting together a medley of my favorite fall flavors. This combination of apples, sweet potatoes, and maple syrup perfectly compliment  the roasted turkey leg and remind me of flavors and scenes from back in New York. 
 
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