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Advocate Down Syndrome

Welcome to Holland

As part of my collection of books that I first ordered when Gellibean was born, I was sure to order The Road Map to Holland, by Jennifer Graf Groneberg. When I searched for books on Down Syndrome on Amazon, this is one of the first memoirs that will come up. I didn’t have anything to go on at that time, so I ordered all the top picks and top search options from Mr. Google.

Road Map to Holland was one of the first memoirs written by a mom to a child with Down Syndrome. It was published in 2009 and shares the author’s struggles of not just with having a child with DS, but also with the fact that she had three children under the age of four. Parenting is never easy and Jennifer shares the good and the bad with a myriad of details that many mothers can relate to when going thru their days. 

Screen Shot 2015-02-19 at 10.41.33 AM

Keep in mind that Road Map to Holland was groundbreaking in the sense that she not only shared her disappointment with her son’s diagnosis, she worked her way through it having the revelations and shifts in perspective that many of us can relate to as “Special Mothers.” Previously, many of the books that parents could find for help with Down Syndrome, were clinical and not written from a parents perspective.

I wanted to take the time to share the poem by Emily Perl Kingsley which is the inspiration for the title of Jennifer’s book. It’s not a tear jerker like “The Special Mother,” by Erma Bombeck, but it is quite valuable in helping us put things into perspective. Holland is a beautiful country after all, isn’t it?

WELCOME TO HOLLAND

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”

And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.

But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.

by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

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It’s December 1st! Is there anything more delic It’s December 1st!

Is there anything more delicious than the smell of Christmas and the new found freedom as we anticipate celebrating the holidays with our families again?

@festivalmall has hosted a series of musical shows since November 5th that include Ace Banzuelo and Silent Sanctuary. Check out Michael Pangilinan on December 10th, too!

With Santa visiting, Christmas parties, arts and crafts and lots of promos, you can even enter for a chance to win a Toyota Fortuner!

Best of all-I love it when the places we know give purpose to their celebrations. Thank you #FestivalMall for partnering with @dsapi1  this holiday season. 

Thank you for sharing all the different ways we can celebrate the holidays with you!

#tistheseason #seasonofgiving #downsyndromeawareness #aintnothingdownaboutit #upsyndrome
I have always been intimidated by Cornish Hens. Th I have always been intimidated by Cornish Hens. Through this learning exercise with @usapeecphl, I have learned a bit more about these little birds that have bigger breast parts, and thank you Chef @ivoryyat for showing me how easy it is to prepare Greek Lemon Roasted Cornish Hens with Roasted Potatoes.
 
Clean and fresh flavors are perfect for these smaller birds that are rich in protein with zero carbs. Try the recipe in the comments section. I’m sure you’d enjoy it as much as I did!
 
Interested in U.S. Cornish Hens? You can buy them in stores near you. #CornishHen #USCornishHen #PoultryPerfection #CookingWithUSPoultry #USPoultry #USAPEECPHL #ad
@gi.aventajado and I played with some of the @pura @gi.aventajado and I played with some of the @puratosph products that they sent over the other day. Ready to use Bavarian Cream made these Cream Puffs easier than ever. I think we have to figure out how to temper our couverture better…

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@mommymundo always has a way of bringing together @mommymundo always has a way of bringing together just what we need, no matter the time of year. Loving these photos of my first boy that were snapped @expomom.

Anyone else thinking about #HolidayPhotos? I am not one of those moms that has it all together before Christmas. It’s usually a mad dash for us at the end of the year, but if it’s anything that the past few years has taught me, it’s that the little things are what makes the Christmas special.

Many of us haven’t been together with the extended family or even our immediate family in so long. That means it’s the perfect time to document.

@nextbymetrophoto will be hosting one last Christmas Marathon family photo shoot before the end of year. Check them out or shoot them a message. They have some cute set-ups.
****GIVEAWAY ALERT*** 10 things I LOVE about @sed ****GIVEAWAY ALERT***

10 things I LOVE about @sedahotels listed here and on FB!

1. Each property has a Signature Dish. If you can’t make it to Bacolod, you can still enjoy Chicken Inasal in any of their properties.

2. Clean Design. So easy to work and play in a space that is light, modern, and clean in design. 

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7. Work with ease. Internet service is uninterrupted. Meeting rooms are available and easy to book.

8. Relax and Play. From mid-day tubbies with Gelli to, taking advantage of the pool, or the children’s room, the little girl had more than enough things to keep her busy!

9. #FamilyTime. Spending an extended amount of time outside our own space led to laughter, fun conversations, and opportunities to try new things. We were comfortable and rested in the space we were in, which meant more opportunities for us to connect.

10. Homegrown with a Purpose. A Filipino brand that understands the importance of both work and travel, each property is important to the city & province location. Environmentally aware by adopting Mayumi, a Philippine Bald Eagle. 🦅

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Up for grabs is one night in a ONE BEDROOM DELUXE for two persons with breakfast!

Here’s how to enter to win:
1) Follow @sedahotels 
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3) Tag a friend (or more) who love(s) staycations too!
4) Comment why you should win this staycation treat!

Plus points for people who share this post in stories and the winner will be announced on December 6th.
Thankful for work that doesn’t feel like work. Thankful for work that doesn’t feel like work.

@kitchen143 is something I really do love. Sharing a little bit of my kitchen with viewers and followers brings me joy. Even better when I get to work with chefs whom I can learn from and friends who like to spend time in the kitchen too!

#Thanksgiving
Thankful for the gift of music. Wish I caught mor Thankful for the gift of music.

Wish I caught more mini moments from We Will Rock You.

Such a great musical!

@sedahotels 
#sedaresidencesmakati 
#sedaat10
Thankful for @bestbuddies_ph. @gelliaventajado j Thankful for @bestbuddies_ph. 

@gelliaventajado joined our family and led me to @bestbuddies. 

Thankful for all the ambassadors who were able to spend time with us. And for @smlpeeps  and @asurionphcareers for helping make magic happen on Saturday afternoon for #Friendsgiving.

#Thanksgiving #bestbuddiesph
Thankful for women who share their faith with me. Thankful for women who share their faith with me. 

#Thanksgiving
Is there anything better than a stuffed turkey at Is there anything better than a stuffed turkey at this time of year? Whole turkeys require serious commitment to cook. #IYKYK But because U.S. Poultry is now available here in the Philippines, that also means preparing turkey is a tad bit easier.
 
Frozen U.S. turkey products are available and ready to cook for people who want to dabble with flavors for this bigger bird but aren't sure how.
 
Thank you to Chef @ivoryyat for putting together a medley of my favorite fall flavors. This combination of apples, sweet potatoes, and maple syrup perfectly compliment  the roasted turkey leg and remind me of flavors and scenes from back in New York. 
 
@usapeecphl l has the highest standards that follow USDA requirements which are certified safe before shipping to the Philippines. Get them in stores near you. 

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