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Advocate Down Syndrome

World Down Syndrome Day 2014

Today is a special day.

It’s March 21st.

Trisomy Twenty-One is something we have come to understand, since Gellibean has joined our family. We have become more aware of words that can be hurtful, more aware of other children with special needs, more aware of just how precious this life we are given…really is.

Down Syndrome occurs at conception. Typical people have 46 chromosomes. We receive 23 from our mom and 23 from our dad, making 23 pairs. People with D.S. have an extra chromosome attached to the 21st pair, so instead of a pair, they have 3 copies of the 21st chromosome, hence the name Trisomy Twenty-One. While there are many physical signs and characteristics that can be attributed to the presence of that extra chromosome, one thing rings true for me, as I have come into contact with parents who were gifted with babies just like Gelli…OUR LIVES WERE FOREVER CHANGED IN A POSITIVE WAY.

We didn't know how much Gellibean would enrich our lives when we brought her home from the hospital. But luckily, we figured it out pretty quickly, and for that-I'm grateful.

We didn’t know how much Gellibean would enrich our lives when we brought her home from the hospital. But luckily, we figured it out pretty quickly, and for that-I’m grateful.

About a month back, one of my readers contacted me via Facebook and asked if she could put me in touch with this husband and wife team who were doing a special photo exhibit for WDSD. Nancy’s daughter, Naomi was invited to be part of a photo exhibit that is included in a WDSD event, which was spearheaded by Dr. Dimalanta. (Naomi’s developmental pediatrician) They were looking for other children to photograph and include, and since Nancy had just read a post that I wrote about my friend’s daughter Camille, she thought that I might like to include Gellibean in this photo exhibit as well.

poster

The husband-wife team Nancy made reference to were in charge of the photo exhibit and had recently moved to Manila from the states. Because the Down Syndrome community is very small, I had heard of a physical therapist who came home to Manila, and was doing wonderful things for some of Gelli’s batchmates in DSAPI. My friend Shereen and I have always exchanged progress notes when talking about our kids and the therapies we have them completing weekly, so I knew of this therapist, named Hosanna. Hosanna is the wife of the husband-wife team that I referred to earlier. Tony is her husband, and he is the man behind the camera for the photo exhibit which can be seen today at St. Luke’s.

Gellibean has opened up our world in more ways than one. Photo Credit:

Gellibean has opened up our world in more ways than one. Photo taken during the Best Buddies Manila Open House by Kimi Lim from Imagine Nation Photography

When I took Gelli for her photo shoot with Tony, I recognized right away that he was from the States because of his accent. And after we got to talking…I ONLY THEN figured out that he was the husband of “Hosanna the therapist”, that I had already heard so much about from Shereen! Tony shared that Hosanna recently opened up a therapy center and that they brought in much of the equipment from abroad to aide their clients in their development and reaching their milestones. Med Mom Clinic is now on the list of places I want to visit so I can share  it with any readers who might live nearby and are looking for a center for their child. (Look for that later on the blog :-))

Liam and Gelli have brought George, Shereen, Nino and I together. They have forged a bond of friendship between our families that has provided comfort and laughter. I'm sure we will continue to grow and deepen our friendships as the children grow up as well. Missing from this pic is Marty and his parents Noel and Elaine!

Liam and Gelli have brought George, Shereen, Nino and I together. They have forged a bond of friendship between our families that has provided comfort and laughter. I’m sure we will continue to grow and deepen our friendships as the children grow up as well. (Missing from this pic is Marty and his parents Noel and Elaine!) Photo taken during the Happy Walk 2014.

If you are in the area today-stop by St. Luke’s BGC. Gelli and I will be there for World Down Syndrome Day 2014…come and say hello!

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« Best Buddies Manila
World Down Syndrome Day 2014 Part 2 »

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Is there anything more delicious than the smell of Christmas and the new found freedom as we anticipate celebrating the holidays with our families again?

@festivalmall has hosted a series of musical shows since November 5th that include Ace Banzuelo and Silent Sanctuary. Check out Michael Pangilinan on December 10th, too!

With Santa visiting, Christmas parties, arts and crafts and lots of promos, you can even enter for a chance to win a Toyota Fortuner!

Best of all-I love it when the places we know give purpose to their celebrations. Thank you #FestivalMall for partnering with @dsapi1  this holiday season. 

Thank you for sharing all the different ways we can celebrate the holidays with you!

#tistheseason #seasonofgiving #downsyndromeawareness #aintnothingdownaboutit #upsyndrome
I have always been intimidated by Cornish Hens. Th I have always been intimidated by Cornish Hens. Through this learning exercise with @usapeecphl, I have learned a bit more about these little birds that have bigger breast parts, and thank you Chef @ivoryyat for showing me how easy it is to prepare Greek Lemon Roasted Cornish Hens with Roasted Potatoes.
 
Clean and fresh flavors are perfect for these smaller birds that are rich in protein with zero carbs. Try the recipe in the comments section. I’m sure you’d enjoy it as much as I did!
 
Interested in U.S. Cornish Hens? You can buy them in stores near you. #CornishHen #USCornishHen #PoultryPerfection #CookingWithUSPoultry #USPoultry #USAPEECPHL #ad
@gi.aventajado and I played with some of the @pura @gi.aventajado and I played with some of the @puratosph products that they sent over the other day. Ready to use Bavarian Cream made these Cream Puffs easier than ever. I think we have to figure out how to temper our couverture better…

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@mommymundo always has a way of bringing together @mommymundo always has a way of bringing together just what we need, no matter the time of year. Loving these photos of my first boy that were snapped @expomom.

Anyone else thinking about #HolidayPhotos? I am not one of those moms that has it all together before Christmas. It’s usually a mad dash for us at the end of the year, but if it’s anything that the past few years has taught me, it’s that the little things are what makes the Christmas special.

Many of us haven’t been together with the extended family or even our immediate family in so long. That means it’s the perfect time to document.

@nextbymetrophoto will be hosting one last Christmas Marathon family photo shoot before the end of year. Check them out or shoot them a message. They have some cute set-ups.
****GIVEAWAY ALERT*** 10 things I LOVE about @sed ****GIVEAWAY ALERT***

10 things I LOVE about @sedahotels listed here and on FB!

1. Each property has a Signature Dish. If you can’t make it to Bacolod, you can still enjoy Chicken Inasal in any of their properties.

2. Clean Design. So easy to work and play in a space that is light, modern, and clean in design. 

3. Beautiful views. Every chance I got, I would sit outside at @straightupatseda. 

4. Spacious Rooms and Residence Stays. Staying in the Three Bedroom Premier was perfect for our family. 

5. Attentive Service. Everyone was pleasant and accommodating.

6. Centrally Located. If you are thinking of fun things to do in Makati and want a home base, Seda Residences Makati is near a few of the museums, parks, and malls.

7. Work with ease. Internet service is uninterrupted. Meeting rooms are available and easy to book.

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9. #FamilyTime. Spending an extended amount of time outside our own space led to laughter, fun conversations, and opportunities to try new things. We were comfortable and rested in the space we were in, which meant more opportunities for us to connect.

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Up for grabs is one night in a ONE BEDROOM DELUXE for two persons with breakfast!

Here’s how to enter to win:
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Plus points for people who share this post in stories and the winner will be announced on December 6th.
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Such a great musical!

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@gelliaventajado joined our family and led me to @bestbuddies. 

Thankful for all the ambassadors who were able to spend time with us. And for @smlpeeps  and @asurionphcareers for helping make magic happen on Saturday afternoon for #Friendsgiving.

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Is there anything better than a stuffed turkey at Is there anything better than a stuffed turkey at this time of year? Whole turkeys require serious commitment to cook. #IYKYK But because U.S. Poultry is now available here in the Philippines, that also means preparing turkey is a tad bit easier.
 
Frozen U.S. turkey products are available and ready to cook for people who want to dabble with flavors for this bigger bird but aren't sure how.
 
Thank you to Chef @ivoryyat for putting together a medley of my favorite fall flavors. This combination of apples, sweet potatoes, and maple syrup perfectly compliment  the roasted turkey leg and remind me of flavors and scenes from back in New York. 
 
@usapeecphl l has the highest standards that follow USDA requirements which are certified safe before shipping to the Philippines. Get them in stores near you. 

#ad #Turkey #USTurkey #Thanksgiving #PoultryPerfection #CookingWithUSPoultry #USPoultry #USAPEECPHL #ServeTurkey #EatTurkey
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