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Advocate Down Syndrome

28 Days of Awareness

I have met many parents I look up to through my journey of parenting Gellibean. Some are mommas I spend time with every now and then, some parents I have only met online through Instagram and by following their blogs, and others, I get together with on a regular basis.

Agnes is one of the moms in DSAPI who I go to when I need help, understanding, and inspiration in my parenting journey with Gellibean. Whenever we get together, I am reminded just how much one can do in a day if she is organized, has a desire to help others, and would still like to find time for herself. Through our friendship, I have gotten to know her and I admire her ability to be able to bring people together for our cause.  

Her son Jeremy is almost 19 years old. He plays golf, is super witty, a little naughty, and whenever Nino and I go to the DSAPI events, we know that we will get to spend a little time with him as well.

28 Days of Awareness was originally published on Agnes Lapena’s Facebook Page last year during the month of February. She has been contributing to Down Syndrome Awareness ever since Jeremy was a little peanut. And you can see it not just through parts of the album I will share with you here, but through all the work she does in our community.

Thank you Agnes for allowing me to share bits and pieces (once again) of your album through my blog!

1797540_10152041550804219_1271861644_n

In 2002, President Gloria Macapagal declared February as National Down Syndrome Consciousness Month. 

1782152_10152041554089219_1323555657_nJeremy was born to the Lapeña family and their lives would forever be “different.”

Photo Credit: Agnes Lapeña

Photo Credit: Agnes Lapeña

Down Syndrome fact: Dr Jerome Lejeune is the first doctor who identified Down syndrome with trisomy of 21st chromosome. This research was done in 1959. The characteristics of people with Down syndrome were identified by Dr. John Langdon Down

No one is left behind... not even those with Down Syndrome

No one is left behind… not even those with Down Syndrome

Photo Credit: Agnes Lapeña

Brina Maxino, Edward John Dee, Paolo Pingol, and Arthur Ryan De  Photo Credit: Agnes Lapeña

People with Down Syndrome make good friends. They’re really cool! 

Does Paolo look familiar to you? Check out this post where I get super emotional about his first McDo commercial! 

1898187_10152050183609219_666346675_n

Individuals with Down syndrome have 47 chromosomes instead of the usual 46. It is the most frequently occurring chromosomal disorder. Down syndrome is not related to race, nationality, religion or socioeconomic status. The most important fact to know about individuals with Down syndrome is that they are more like others than they are different.

 1891008_10152060735069219_1629845086_nThis statistic is still very close to how many babies are born with Down Syndrome, not just in the Philippines but also worldwide. It’s a little lower in some countries and a little higher in others. 

1898188_10152077747304219_1892405395_n

 MYTH vs. TRUTH

I would much rather have someone ask me a question about my daughter, or the community we have found comfort in, then go on believing or perpetuating something that is a myth or an untruth. This is part of the reason why I find it so important that during this month of the year, I go out of my way to make sure I do my part in creating awareness, nurturing acceptance and fostering inclusion to make the world a better place for our kids.

Please celebrate February with our family. Celebrate Gellibean. Celebrate the love we have for all kids are a lucky enough to have an extra chromosome. Want to really have fun with us? Join us during The Happy Walk! 

To view Agnes’ album in its entirety, click the Facebook link here.

To check out the DSAPI Facebook page click here.

To learn more about how you can get involved and join The Happy Walk, click here.

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It’s December 1st! Is there anything more delic It’s December 1st!

Is there anything more delicious than the smell of Christmas and the new found freedom as we anticipate celebrating the holidays with our families again?

@festivalmall has hosted a series of musical shows since November 5th that include Ace Banzuelo and Silent Sanctuary. Check out Michael Pangilinan on December 10th, too!

With Santa visiting, Christmas parties, arts and crafts and lots of promos, you can even enter for a chance to win a Toyota Fortuner!

Best of all-I love it when the places we know give purpose to their celebrations. Thank you #FestivalMall for partnering with @dsapi1  this holiday season. 

Thank you for sharing all the different ways we can celebrate the holidays with you!

#tistheseason #seasonofgiving #downsyndromeawareness #aintnothingdownaboutit #upsyndrome
I have always been intimidated by Cornish Hens. Th I have always been intimidated by Cornish Hens. Through this learning exercise with @usapeecphl, I have learned a bit more about these little birds that have bigger breast parts, and thank you Chef @ivoryyat for showing me how easy it is to prepare Greek Lemon Roasted Cornish Hens with Roasted Potatoes.
 
Clean and fresh flavors are perfect for these smaller birds that are rich in protein with zero carbs. Try the recipe in the comments section. I’m sure you’d enjoy it as much as I did!
 
Interested in U.S. Cornish Hens? You can buy them in stores near you. #CornishHen #USCornishHen #PoultryPerfection #CookingWithUSPoultry #USPoultry #USAPEECPHL #ad
@gi.aventajado and I played with some of the @pura @gi.aventajado and I played with some of the @puratosph products that they sent over the other day. Ready to use Bavarian Cream made these Cream Puffs easier than ever. I think we have to figure out how to temper our couverture better…

#workinprogress #wasdelicious #giabaked #puratosph #gavinosph #anyonecanbake
@mommymundo always has a way of bringing together @mommymundo always has a way of bringing together just what we need, no matter the time of year. Loving these photos of my first boy that were snapped @expomom.

Anyone else thinking about #HolidayPhotos? I am not one of those moms that has it all together before Christmas. It’s usually a mad dash for us at the end of the year, but if it’s anything that the past few years has taught me, it’s that the little things are what makes the Christmas special.

Many of us haven’t been together with the extended family or even our immediate family in so long. That means it’s the perfect time to document.

@nextbymetrophoto will be hosting one last Christmas Marathon family photo shoot before the end of year. Check them out or shoot them a message. They have some cute set-ups.
****GIVEAWAY ALERT*** 10 things I LOVE about @sed ****GIVEAWAY ALERT***

10 things I LOVE about @sedahotels listed here and on FB!

1. Each property has a Signature Dish. If you can’t make it to Bacolod, you can still enjoy Chicken Inasal in any of their properties.

2. Clean Design. So easy to work and play in a space that is light, modern, and clean in design. 

3. Beautiful views. Every chance I got, I would sit outside at @straightupatseda. 

4. Spacious Rooms and Residence Stays. Staying in the Three Bedroom Premier was perfect for our family. 

5. Attentive Service. Everyone was pleasant and accommodating.

6. Centrally Located. If you are thinking of fun things to do in Makati and want a home base, Seda Residences Makati is near a few of the museums, parks, and malls.

7. Work with ease. Internet service is uninterrupted. Meeting rooms are available and easy to book.

8. Relax and Play. From mid-day tubbies with Gelli to, taking advantage of the pool, or the children’s room, the little girl had more than enough things to keep her busy!

9. #FamilyTime. Spending an extended amount of time outside our own space led to laughter, fun conversations, and opportunities to try new things. We were comfortable and rested in the space we were in, which meant more opportunities for us to connect.

10. Homegrown with a Purpose. A Filipino brand that understands the importance of both work and travel, each property is important to the city & province location. Environmentally aware by adopting Mayumi, a Philippine Bald Eagle. 🦅

Want to win your own staycation at #SedaResidencesMakati?

Up for grabs is one night in a ONE BEDROOM DELUXE for two persons with breakfast!

Here’s how to enter to win:
1) Follow @sedahotels 
2) Follow @mommanmanila & @kitchen143 
3) Tag a friend (or more) who love(s) staycations too!
4) Comment why you should win this staycation treat!

Plus points for people who share this post in stories and the winner will be announced on December 6th.
Thankful for work that doesn’t feel like work. Thankful for work that doesn’t feel like work.

@kitchen143 is something I really do love. Sharing a little bit of my kitchen with viewers and followers brings me joy. Even better when I get to work with chefs whom I can learn from and friends who like to spend time in the kitchen too!

#Thanksgiving
Thankful for the gift of music. Wish I caught mor Thankful for the gift of music.

Wish I caught more mini moments from We Will Rock You.

Such a great musical!

@sedahotels 
#sedaresidencesmakati 
#sedaat10
Thankful for @bestbuddies_ph. @gelliaventajado j Thankful for @bestbuddies_ph. 

@gelliaventajado joined our family and led me to @bestbuddies. 

Thankful for all the ambassadors who were able to spend time with us. And for @smlpeeps  and @asurionphcareers for helping make magic happen on Saturday afternoon for #Friendsgiving.

#Thanksgiving #bestbuddiesph
Thankful for women who share their faith with me. Thankful for women who share their faith with me. 

#Thanksgiving
Is there anything better than a stuffed turkey at Is there anything better than a stuffed turkey at this time of year? Whole turkeys require serious commitment to cook. #IYKYK But because U.S. Poultry is now available here in the Philippines, that also means preparing turkey is a tad bit easier.
 
Frozen U.S. turkey products are available and ready to cook for people who want to dabble with flavors for this bigger bird but aren't sure how.
 
Thank you to Chef @ivoryyat for putting together a medley of my favorite fall flavors. This combination of apples, sweet potatoes, and maple syrup perfectly compliment  the roasted turkey leg and remind me of flavors and scenes from back in New York. 
 
@usapeecphl l has the highest standards that follow USDA requirements which are certified safe before shipping to the Philippines. Get them in stores near you. 

#ad #Turkey #USTurkey #Thanksgiving #PoultryPerfection #CookingWithUSPoultry #USPoultry #USAPEECPHL #ServeTurkey #EatTurkey
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